Thursday, June 21, 2007
I was putting Katy down for her nap and I heard Sean go out the front door. So I went out to get him. He had somehow crawled under the front of the house through a vent in the foundation. He was stuck and couldn't get back out. I tried to pull him out, but he just couldn't fit through the hole. I have no idea how he managed to get in there. He was scared and signing "help please, help please!" I managed to pull a piece of siding off so I could get him out. He was so filthy I just put him right in the tub. Just another episode of "Adventures in Autism Land". I have read that many autistic kids like crawling into tight spaces, so I guess this is just par for the course.
I have wanted a Vitamix blender ever since Katy turned 2 and I decided to feed her real food through her tube. I have been using babyfood because our blender just couldn't get the food smooth enough to prevent clogging. That got really expensive, but the blender that would do what I needed it to do was the vitamix and it was too expensive too. They cost like $480. With a doctors note stating that the child needs it for tube feeding you can get it for $280. That is still too much for us to pay at one time. I started asking my friends how they got their blenders for their kids. Most of them either saved up the money over a long period of time or they got help from their church. I didn't want to ask such a large amount from our church and saving wasn't realistic with spending so much on baby food each week. I contacted the president of vitamix and explained our situation and sent him a note from Katy's doctor and he DONATED a blender to us. We got the blender on Monday and let me tell you it is worth that $480. The first night Katy had spaghetti and meat sauce with a fresh herb salad through her tube. It is so much easier to meet her nutritional needs with real food. Baby food is expensive and rather void of nutritional content especially calories, fat and protein as well as some vitamins and minerals. She is holding her food down well and her energy levels are up and her color looks better than it ever has. I contacted Katy's dietician and she is excited to help me figure out what Katy's needs are so I can give her lovingly prepared meals even if she has trouble with oral eating. It makes me feel so good to cook for Katy too.
Monday, June 11, 2007
Katy walked all over church yesterday all by herself using her walker! She was grinning ear to ear and soaking up all the attention she was getting. She has learned how to turn the walker and is working on getting herself up on it from the floor. I am so proud of all her hard work. She is one step closer to getting out of the wheelchair for good.
Thursday, June 7, 2007
We were beginning to worry about her last week shortly after she signed the contract. She kept bringing people over to see the place and asking questions that she should have asked prior to signing a contract. We could force the issue because she is bound by the contract, but we have decided to just forget about her and call back the other people who showed interest in the house. This is such a roller coaster. I am trying to be upbeat and not let this get me down, but it is hard. We cannot make an offer on the new house until we are closing on this one, so it is a waiting game.