Wednesday, November 19, 2008
It got to be too much for me. I just couldn't keep all the plates spinning. It started out as only 4-5 hours a day 4-5 days a week, but as time went on it began to change. I was getting a set amount of money for that and as my hours increased my pay remained the same and then actually began to decline. I was making about $2 an hour and I will not work for that! Also I showed up to work one day and they were fighting and trying to draw me into the fight. They started screaming obscenities in front of J.D. and I spoke up and said I would not tolerate that. My last day is Friday and I am relieved and at the same time will miss the kids and the extra money that I was making although towards the end that wasn't much.
Today my tiny girl is 5 years old! I can't believe she is already 5. She is home sick from school today as she was last year. She is doing the mystery fever thing again. Maybe she will not do it as much as last year. I honestly don't know what to do about it and neither do her doctors. She is on antibiotics now because her white blood cell count is up indicating the presence of an infection. I will also put her on some coconut yogurt and probiotics to counter act the negative effects of the antibiotics. She vomits and doesn't digest her food well when she is running a fever so she loses weight and she can't really afford any weight loss as tiny as she is. She is 24.8 lbs only 1 lb more than her baby brother. Everyone is beginning to ask if they are twins because they are almost the same size. She has a follow up with her endocrinologist scheduled for March. He is tracking her growth and at her last appointment he said that she is small statured, but growing at the same rate as other children her age so no reason to be alarmed. Her growth hormone levels were normal when we checked them and her bone age was within normal limits meaning that her bones are growing in a normal way. Delayed or accelerated bone age is a sign of trouble so she is good on that front.
Thursday, November 13, 2008
I saw this on Yahoo!News today and thought it was interesting. Maybe the public schools can take notes and learn from this to help these kids. Being understood really goes a long way to teaching someone. If someone feels they have to keep their guard up all the time to avoid sensory overload and miscommunication and bullying they have a real hard time learning. Sean's school is very individual in their approach to the children's needs and focuses on each child's strengths and weaknesses. It has really made a huge difference in his ability to learn. His teacher and aides really seem to understand. Since starting there he is making great progress. This morning he wanted me to blow up a balloon. He gave me a balloon and said, "Momma". I said, "Do you want me to blow up a balloon?" He said, "mm-hmm." I started to blow it up and he said, "Make it big please!" and threw his arms out to indicate big. I was so proud of him I could burst! We actually had a conversation, YAY!