The Cornelia deLange Syndrome Foundation needs your help. The foundation has really helped our family in a lot of ways and they need this money to further research not just CdLS, but also other associated things like autism, which is near and dear to my heart. This is the syndrome that best fits Katy and I feel that the parents that I have met through the foundation have given me so much in terms of support, information and hope for the future.
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