I am arguably the busiest mommy in America. I have a wonderful husband, William that I married in 1998. I have 3 beautiful kids. Sean, my oldest was born in 2002 and has autism. My second, Katy was born in 2003 and was born with what we think is Cornelia deLange Syndrome J.D. is my baby and he was born in 2006 and seems to be right on target with development and is quite the mommy lover. My life is full and blessed beyond measure.
Wednesday, December 26, 2007
Why can't anyone tell me what is wrong with her?
This same thing happened last year. Katy is always sick. Last year she was sick from December to April and it looks like she is having a repeat. She has been sick so much and none of her medical staff knows why. She will be fine and then an hour later she is running a 104 degree fever. An hour after that she is fine again. She coughs all the time and sometimes so hard she throws up. She also gets slow gastric emptying, meaning that her stomach slows way down and it takes forever to digest. I change her diet to help and it usually does improve, but then it comes back. I am never going to get her to gain any weight at this rate. She will gain 2 or 3 pounds, then go through one of her spells and lose it all. She just can't break the 25lbs mark. I just want to know why she keeps getting sick. I can't keep dealing with this all the time, I am already the busiest mommy in America, I don't need even more to deal with.
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3 comments:
Are her tonsils OK?
She is not a candidate for tonsilectomy because she has a very large cleft palate and removing them might render her unable to speak because she doesn't have enough tissue to develop speech.
Sounds like my daughter. Sometimes she would get a fever with her cyclical vomiting syndrome. We only recently found out she had that after years of repeated hospitalizations. It can often go along with chromosome disorders. Praying for you that you get some answers.
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