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Friday, September 18, 2009

Katy got approved

We have been trying for years to get some help with Katy's care. There is a program called the Elderly and Disabled Medicaid Waiver program that I signed her up for. The first time they said she didn't qualify, but the second time I talked to a Social Worker who went to work to make it happen. Katy was approved this time. The program allows medically fragile people to remain in their own homes being cared for by their own families by providing help to make it easier on the family. When families can't do it anymore the people are put into expensive institutional care, which ends up costing more and no one is happy with the situation. These programs ensure that people with disabilities have choices for their own residence and daily care needs. I was very hesitant to sign up for this program even though it would be a big help because I would have to have a stranger come into my home and care for my medically fragile child or so I thought. Turns out that I can choose my caregiver if they can get hired by the agency chosen to provide the services. Tara, my sister needed a job so I referred her to be hired and they hired her. She comes each afternoon and helps with keeping Katy's room, bathroom and play room clean as well as changing her bed linens and washing her clothes. She gives her her bath, lays out her clothes for the next day and plays with her. She also provides respite care 4 hours per week. Respite care is a sitter so we can spend time with other children or go out and have fun without worrying. I get to focus on Sean and J.D. and know Katy is well cared for. The social worker called yesterday and asked how it was going. I said, "Well I don't feel like I am so busy I can't breathe anymore."

1 comment:

Anonymous said...

That is wonderful! This is the situation those programs are for. I know what you mean about being afraid of someone coming into your house. I have full time nursing care because I have a trach and it was frightening at first. But I have been blessed with some wonderful people who I couldn't imagine my life being without. Still it is a bit apprehensive at first. Even now when we have to welcome new people and you always wonder who you are going to get. I think the thing to remember that is comforting is that you can always say no, this person will not work. Of course you can't say that to many times or they won't be able to provide the services you need but we have done it a few times. That is great that you can hire your own people. What a great thing to be able to hire your sister, I'm sure Katy loves spending time with her aunt :o)

Danette Baker
Spokane Washington