Monday, July 28, 2008
Unidagnosed syndromes you tube channel
We are a part of a non profit organization called SWAN USA(Syndromes Without a Name, USA). They have a you tube channel and there is a slide show there that explains what they are for and shows the kids. Katy is on there. I know these kids from talking to their moms for years and we have grieved together as we have lost some over the years. That is the most tragic thing when you talk about undiagnosed kids, they face terrible challenges and the doctors don't know how to help. Please consider shopping online through I-give and designating funds for SWAN USA. This organization is on a crusade to help researchers and doctors help these kids by finding out what is wrong. They also try to educate parents and caregivers on where to go for help.