Free Pillar - Indivisible ringtone by ministercj4jc

Free Pillar - Indivisible ringtone by ministercj4jc

Two that I will miss

A dear friend and fellow advocate and the granddaughter she loved and cared for so much have gone home to be with the Lord this week. Teresa took on the responsibility of caring for her granddaughter, Skylar when her mother couldn't care for her complex special needs. The two of them were inseparable. The love between them was inspirational, they touched many lives. Skylar loved live to the fullest, despite her many challenges. Teresa loved ALL children and that love was evident from her loving care of the children placed in her care in her many years as a daycare director. She loved my kids and we loved her dearly and will miss them both. Summer camp just won't be the same without them. The two of them served the Lord together and now they will praise him together forever.

Please consider helping out

I have been communicating with the mom of these 2 precious children, C.J. and Cierra. They have an undiagnosed genetic condition that leaves them disabled. There mother is much like me in that she searches for answers and helps her kids any way she can. Her babies needed specialized beds but she couldn't afford them. She lost her job, like many people have faced and is unable to find work right now. She sought out help from organizations that help children with disabilities, but many of them require a specific diagnosis in order to help. Her children are like Katy and still don't have a diagnosis. She finally found an organization willing to help. Please consider donating to help these very special children get the equipment they so desperately need.

What is Christmas?

Be thankful to the Lord

This year, as in 2003, our Thanksgiving table will not be complete. My daddy is serving us in Afghanistan. We will think of him and pray for his safe return that day and everyday. Please keep him in your prayers and trust the Lord to bring him home safe. Thank God that we live in a country where people are willing to fight for our freedom. Thank God we have plenty of food and will have a feast on Thanksgiving to celebrate all that God has blessed us with. Never forget where it all comes from.

Watch this video.

Update on my health

I am not doing well. I started on thyroid meds 2 months ago and they are not helping. I am getting worse. Went to the doc on Tuesday and he said that there is something else going on in addition to the thyroid so we are looking for answers. My heart rate jumped from 80 when laying on my back to 115 when I sat up. That would explain why it feels like my heart will leap from my chest every time I do anything physical like walk up the stairs. He is sending me to the cardiology clinic and has ordered a echocarddiogram and a Holter monitor to wear for 24 hours. He also ordered some labs. He prescribed a beta blocker to try to keep my heart rate more steady and an anti depressant to get me by until he figures out what is going on. I do not like the way the beta blocker is making me feel, so I will be calling him back today. I think this has to do with my adrenal gland in addition to my thyroid. They often will both have problems because one depends on the other for proper function.

Do You See Me?

The last little boy on this video has CdLS, which is the syndrome that fits Katy best. This video made me cry. These babies are perfect in God's sight.

As a mom-The sisterhood of the mommy patriots

I was watching Glenn Beck and saw a mom, just like the rest of us who decided to start a website to connect moms to stand up for America called www.asamom.org. This blog has been rather non-political, but I can't keep silent anymore. I took an oath to protect this country and her constitution with my very life and now it is being torn to shreds by those we elected to represent us. I want to secure a future for my children to live in liberty and the pursuit of happiness. Equal opportunity, not equal possessions. I was brought up to believe that people do not appreciate things that are given to them; they have to work for them in order to fully understand how important they are. Liberty is no different. Our forefathers put their lives on the line to grant us liberty in our constitution, yet we are complacent. This country was founded on the premise that God created us all equal and gave us certain inalienable rights. A portion of the Battle Hymn of the Republic says it all: "He died to make men Holy, let us die to make men free". Americans value the liberty of themselves and others above their own lives. I went to a Tea Party on 9-12 and a veteran of WWII spoke. I will never forget his speech as long as I shall live. He was in charge of the group of American soldiers who discovered and liberated the first known Nazi concentration camp. He said that when he and his men went into the camp the prisoners there were terrified. He screamed out, "We are AMERICANS!!" A cheer roared out from the crowd because they knew they were freed. We are still AMERICANS and we will fight for liberty at home and abroad until the Lord returns for those who have accepted Him.

Katy got approved

We have been trying for years to get some help with Katy's care. There is a program called the Elderly and Disabled Medicaid Waiver program that I signed her up for. The first time they said she didn't qualify, but the second time I talked to a Social Worker who went to work to make it happen. Katy was approved this time. The program allows medically fragile people to remain in their own homes being cared for by their own families by providing help to make it easier on the family. When families can't do it anymore the people are put into expensive institutional care, which ends up costing more and no one is happy with the situation. These programs ensure that people with disabilities have choices for their own residence and daily care needs. I was very hesitant to sign up for this program even though it would be a big help because I would have to have a stranger come into my home and care for my medically fragile child or so I thought. Turns out that I can choose my caregiver if they can get hired by the agency chosen to provide the services. Tara, my sister needed a job so I referred her to be hired and they hired her. She comes each afternoon and helps with keeping Katy's room, bathroom and play room clean as well as changing her bed linens and washing her clothes. She gives her her bath, lays out her clothes for the next day and plays with her. She also provides respite care 4 hours per week. Respite care is a sitter so we can spend time with other children or go out and have fun without worrying. I get to focus on Sean and J.D. and know Katy is well cared for. The social worker called yesterday and asked how it was going. I said, "Well I don't feel like I am so busy I can't breathe anymore."

What it means to me to be a caregiver

I am a wife and mother. I have 3 children; they are my life. Caregiving is not a job, it is not a mandate, it is a calling. I was an everyday kind of lady before I became a mother. Even when I had my first child I never suspected I would be called a caregiver, a mother yes. I watched that precious baby and knew he was all that mattered anymore. Little did I know what that would really come to mean to me as time passed.

Then I had a beautiful baby girl and as soon as she was born it became apparent that God had called me to be a caregiver. She was born with disabilities. She was whisked away to a hospital 2 hours away and all I could do was cry and ask God, "Why my precious baby?"

I soon joined her in the NICU at Children's Hospital. I knew she was in good hands, but I was her mommy and she needed me. When I saw her tiny little body in that isolette with tubes and wires everywhere, I wondered how I was going to "mother" her in this environment. I was there every minute they would allow me there. She had test after test after test. They still, 6 years later, don't know why she faces the challenges she does. It felt as though she was not mine at times. I felt so removed from her, she seemed so fragile, but I LOVED her with a mother bear kind of love.

She finally came home from the hospital about a month later and we settled in. Things did not get easier, I worried about her every minute of the day. We had so little information about her condition, just fragments of a still unsolved puzzle. We really didn't know if she would survive. She absolutely detested feedings and would scream and refuse and as a result did not grow well. She turned blue a time or two and scared the life out of me. My husband and I were so exhausted from the night feedings and the stress of a special needs baby. We couldn't reach out for help because no one seemed to understand how to help. That first year is quite the blur. My beautiful daughter had 76 doctor appointments in a city 2 hours away from home that first year. Our finances were terrible and our debt was soaring. My husband and I made a commitment to keep the connection that had created these beautiful children. We actually grew stronger through it, although it didn't feel like it at the time.

Then out of the blue it seemed, I began to notice that my oldest son was not progressing as he should. I searched frantically for answers and came to the conclusion that he had autism. I asked his doctor about it and was told that after all we had been through that he was probably just having a hard time adjusting to life with a special needs sibling. I knew in my heart he was wrong and self referred to the early intervention program for both children. We took my daughter to the neurologist who was following her for a bleed in the brain during the neonatal period and the doctor asked if we had my son evaluated for autism yet. I knew then that I had been right all along. That doctor diagnosed my son and we got him the help he really needed.

My daughter's feeding completely dominated the whole household all the time. Then I went to her pediatrician's office for her 9 month check up in tears. I calmly explained that my baby needed a feeding tube right away. I had given it my best shot, but I just couldn't force her kicking and screaming anymore just to get enough food into her to keep her hydrated. She had stopped growing and I just didn't know what else to do. The day that she got her feeding tube was the first time that she smiled at me. She was 10 months old and had smiled at her daddy and her granny, but not me. She smiled at me that day and I will tell you that was the very moment when I just went head over heals for her. It was as if she said, "thank you mommy, this is just what I needed."

We went on for a long time running from doctor to doctor, tube feeding after tube feeding. She was so developmentally delayed and was falling farther and farther behind. I was sad for her, but also loved her just the way she was. There is nothing on earth that is more joyous than this little girl's laugh. She has fought hard for every milestone and is happy through it all.

I had my 3rd child(a son) when my daughter was almost three years old. She was in a wheelchair, completely dependent. My oldest son(4 years old at the time) was making progress, but still quite the challenge to care for. I was so busy I didn't have time to think or breathe, but my joy was complete. My youngest son is so compassionate, so giving. My youngest son taught his big sister how to walk and his big brother his first words since he stopped talking at 18 months old.

My children, all three of them, have taught me lessons that I would never have learned if I had not earned the title caregiver. Those who never earn the title cannot fully understand the joy, the pain, the laughter, the strength. This is the hardest work one can imagine, but also brings joy beyond measure. To see one smile from a little girl who has faced so much in her life is something beyond explanation. To see a little boy who tries so hard to accomplish things that seem to come natural to the rest of the world is a pride that transcends circumstances.

During those first few months of my daughter's life I prayed and prayed for God to heal her. My husband was praying the same prayers each day. We both over the course of time came to the same conclusion that it wasn't my daughter who needed healing. She was exactly who God had planned her to be. It was me that needed healing. It is often said that "God will never give you more than you can handle." Before I became a caregiver I believed that. Now I have been led into the realization that He does in fact give us more than we can handle so that we can learn to give it back to Him. We have to get past our own ideals and get into the fact that it really isn't about who we are, but how we love. If I had to choose I would choose this life all over again. It is all worth it to see these precious children learn and grow.

Started treatment

Thyroid ultrasound is normal. Started on meds on Wednesday. They are making me nauseated, must take on empty stomach. I always get sick taking meds on an empty stomach. I hope I adjust and the nausea goes away soon, if not I may need to switch to a different brand of meds. Doc tested me for IgA, IgG and IgM, which he said was to check for celiac disease antibodies. Haven't heard results yet.

A Little worried, pray for me

I went to the doctor last week after fainting. I have been having some weird symptoms that are rather non-specific. The doctor ordered some labs that came back abnormal. My TSH was elevated as well as my triglycerides. My HDL(good cholesterol) was a little low, but my LDL(bad cholesterol) was fine as well as my overall cholesterol. I have been diagnosed with hypothyroidism. From my research the triglycerides being high is because of the thyroid problem. I will be going for a thyroid ultrasound this week to investigate further. No wonder I have felt so bad for so long. Good news is that this condition is very treatable and I should be feeling better very soon. This could be an auto-immune disorder and might lead to further testing for other auto-immune diseases.

Been a while

I have been busy and not well so I have not updated in a while. I have been having some health problems that culiminated in me fainting yesterday so off to the dr. I went. I will be seeing a GI dr and getting some blood work done to try to figure out what is going on. Please pray we can figure this out and get it fixed.

We moved in

This house is so awesome. I wake up in the morning and wonder if I am dreaming. I just can't believe this beautiful house is mine! We are still getting settled in, but we plan to have a big BBQ when we get everything set up. Stay tuned for updates.

Moving soon

We heard from our people that we may be closing on the loan for the new house on Friday at 3:00pm. We may be moving in over the weekend! I am so excited, we have waited so long for this. My kids deserve a better home and we are finally getting it. I have been unable to update my blog lately because my back went out 2 weeks ago and I was unable to sit in my computer chair for more than a minute until today. There is much going on right now in the land of IEP(Individualized Education Plans) for the kids. I will try to update later, but it may be after the move. I will find out for sure tomorrow if we will close before the weekend. I will start getting utilities switched and such as soon as I know. We will be borrowing a truck and trailer to make the move quicker, but we have until the 24th to get all our stuff out.

Made me cry

Stumbled across this today and it is just beautiful.

pictures of the inside of the new house

Today we had an opportunity to go over to the new house and go through some items the sellers left behind. They told us to keep whatever we want and they will dispose of the rest. We got some pretty nice things out of the pile and the rest was personal items of theirs or junk. It was so nice to go over and spend some time there. We got a chance to do a little cleaning and it felt good to take care of this beautiful home for the first time. I noted some things that I would like to do when we move in and took measurements for the windows, refrigerator space, etc. We got our good faith estimate today and we already have saved enough to pay for the cash required to close. We got a locked in rate of 5%. Above are some pictures of the inside of the house.

We have chosen not to participate in the recession

We paid off our debt except our mortgage and are sticking to our budget. We are saving lots and lots of money to pay for closing and other costs for our new house. If everyone had a plan for times like these, a layoff wouldn't completely destroy their finances. Dave Ramsey helps people move from fear and anxiety to hope and prosperity even in a recession. Please make plans to attend a Town Hall meeting near you so you can see for yourself that this recession doesn't have to wreak havoc. Hope is a powerful thing and you can have it too.

Article about my grandmother Gracie Newell

http://www.country-magazine.com/2009/AM09/church.asp?RefURL=&KeyCode=&tdate=&PMCode=&OrgURL=

We got approved

All we have to do is fill out all the VA paperwork and we are approved for our VA loan. We should be moving in about a month.

We signed the contract on the new house

If everything goes well we will close the first week in May.

Oh my goodness!

Katy will be wearing a hat for a while. Yesterday afternoon Sean took his paper scissors and cut off all of Katy's hair, she is almost bald. I cried, but she didn't seem to care at all. I know one day I will laugh at this, but it is not funny right now.

We Need a New R-word

We sign the contract tomorrow

She accepted our counter offer and now we will be signing contracts tomorrow. She is in a lease until July and will try to get out of it, but if she can't we will hold off her closing until the first of June. We have chosen a great house that meets our needs and has a very large wooded lot that will be a blast for the kids.

We have an offer

We had a lady come look at the house last week and yesterday she came back a second time with her dad. She has made an offer, but it is significantly less than we had hoped for so we will counter offer. We also will keep in mind that this is a tough market and will do whatever it takes to meet our financial obligations and still keep the sale negotiation going. We are so excited to see this all moving along. We are hoping she will not back out like the one lady did a few years back. This time she will have to pay earnest money so she will have much to lose if she backs out.

Please pray!

A lady came to look at the house yesterday. She is going to look at another house today and get back to us with her decision. She has cash so we will not have to wait on her getting financing. Another person will be looking at the house this afternoon also. Please pray we can finally get this ball rolling.

Here we go again

We are trying to sell our home again. I know it is a crazy time to do that, but it is also a great time to buy a house and we can get a much larger house for our money right now and eventually have some equity to put us in a firmer financial situation. The house we want is here. Now, if we can locate a buyer we will be moving soon. We are not going to make any money on this, but hey we might actually have equity one day, which is not gonna happen in this home.

Too funny!

http://www.youtube.com/watch?v=0nG6OVNiBbo

K3 picture, He is gorgeous!

Report: Kids are restrained, secluded

Report: Kids are restrained, secluded

http://seattlepi. nwsource. com/national/ 1153ap_restraini ng_kids.html

THE ASSOCIATED PRESS

WASHINGTON -- Schoolchildren across the U.S. have been injured or killed
when they were restrained or secluded, a disability rights group says. A
House committee announced a hearing on the issue.

The National Disability Rights Network, in a report Tuesday, identified
cases across the country in which children, many of them with disabilities,
were traumatized, injured or killed at school.

For example, 15-year-old Michigan boy with autism died while being
restrained by four school employees, the report said.

In another case, a 13-year-old Georgia boy hanged himself in a locked
concrete seclusion room after pleading with teachers not to isolate him for
hours at a time.

The group said its report "is clearly just the tip of the iceberg" because
the government doesn't have any system of collecting data about these
abuses.

Rep. George Miller, D-Calif., chairman of the House Education and Labor
Committee, said he would schedule a hearing on the issue.

"This report raises serious questions about the treatment of schoolchildren,
the qualifications and training of staff, and what actions have been taken
to address these unconscionable practices," Miller said. "No child should be
at risk or in danger while at school, no matter what the circumstances. "

--

Recommendations for the new administration

The new administration has asked members of the disabilities communities for recommendations for the agenda in this area. Here is the Autistic Self Advocacy Networks response.

K3 is here

Amy and Kenny had their baby the other day on January 2nd. He is a beautiful little man and Amy and Kenny are thrilled to be parents. He weighed in at 9lbs 4 oz and was 20 inches long. Mom and baby are doing well. I don't have any pictures yet, but when I get them I will post. Congratulation Amy and Kenny on the birth of Kenneth Lamar Henderson III.

A Public Service Announcement

I just learned of a public service announcement produced by the Dan Marino Foundation, with support from the Autistic Self Advocacy Network. I really think this is wonderful, please have a look. Our life is touched by autism, not ruined by it!

Katy's school pictures

Quit my job

It got to be too much for me. I just couldn't keep all the plates spinning. It started out as only 4-5 hours a day 4-5 days a week, but as time went on it began to change. I was getting a set amount of money for that and as my hours increased my pay remained the same and then actually began to decline. I was making about $2 an hour and I will not work for that! Also I showed up to work one day and they were fighting and trying to draw me into the fight. They started screaming obscenities in front of J.D. and I spoke up and said I would not tolerate that. My last day is Friday and I am relieved and at the same time will miss the kids and the extra money that I was making although towards the end that wasn't much.

Happy Birthday Katy!

Today my tiny girl is 5 years old! I can't believe she is already 5. She is home sick from school today as she was last year. She is doing the mystery fever thing again. Maybe she will not do it as much as last year. I honestly don't know what to do about it and neither do her doctors. She is on antibiotics now because her white blood cell count is up indicating the presence of an infection. I will also put her on some coconut yogurt and probiotics to counter act the negative effects of the antibiotics. She vomits and doesn't digest her food well when she is running a fever so she loses weight and she can't really afford any weight loss as tiny as she is. She is 24.8 lbs only 1 lb more than her baby brother. Everyone is beginning to ask if they are twins because they are almost the same size. She has a follow up with her endocrinologist scheduled for March. He is tracking her growth and at her last appointment he said that she is small statured, but growing at the same rate as other children her age so no reason to be alarmed. Her growth hormone levels were normal when we checked them and her bone age was within normal limits meaning that her bones are growing in a normal way. Delayed or accelerated bone age is a sign of trouble so she is good on that front.

interesting story

I saw this on Yahoo!News today and thought it was interesting. Maybe the public schools can take notes and learn from this to help these kids. Being understood really goes a long way to teaching someone. If someone feels they have to keep their guard up all the time to avoid sensory overload and miscommunication and bullying they have a real hard time learning. Sean's school is very individual in their approach to the children's needs and focuses on each child's strengths and weaknesses. It has really made a huge difference in his ability to learn. His teacher and aides really seem to understand. Since starting there he is making great progress. This morning he wanted me to blow up a balloon. He gave me a balloon and said, "Momma". I said, "Do you want me to blow up a balloon?" He said, "mm-hmm." I started to blow it up and he said, "Make it big please!" and threw his arms out to indicate big. I was so proud of him I could burst! We actually had a conversation, YAY!

Good news

I got a call this afternoon from a man named Bobby Johnson. I had no earthly idea why a Bobby Johnson from Minnesota would be calling me. He explained that his family was featured in the same episode of Real Families Real Answers that we are and he just had to call me to say how much our story had touched him. He said that the episode had already showed and we didn't even know because it was supposed to be on in December. We looked it up online and watched it and let me tell you it is GOOD. Get out the tissues and have a watch. Go to http://www.byu.tv and go to Tune in now BYU television and click the link. Then go to the listings and go to Saturday October the 4th at 1:30 pm. This is a powerful episode and is almost exactly what we prayed for. The expert they had commenting has a bit different view of autism than I do so please don't think that I agree with her. You do NOT lose your child when they have autism which she called a chronic mental illness, I do not feel it is a mental illness, but rather a different way of being. I hope that other families will be reached by our story. Please pass this along to anyone you know who might need it.

Edited to add: Try this link and go to October 14 at 8:00pm.

Dave Ramsey's site

William and I have been doing Financial Peace University at church. This is a class to teach us how to handle our finances in a way that allows us to meet our needs, honor God and build wealth over time. It is really making a difference for us and we are learning so much. Dave Ramsey made millions in the real estate business and lost it all during the housing crunch in the 80's. He fought tooth and nail to come back from financial ruin and now is sharing his insight with others who want to succeed the right way. He, being the financial common sense go to guy, now has on his site his take on what we as a country should do about the so called financial crisis. I have e-mailed all my congressmen about this and I pray that the right thing will be accomplished. If Americans would wake up and read their Bibles they would see that the borrower is slave to the lender and strive to never borrow again. William and I have made a pact to never borrow again with the exception of a mortgage that we can afford and we will work our butts off to pay that off early. Peace comes with knowing that no one can come and take the stuff you worked so hard to earn for your family. The following is his common sense plan to get out of this mess:

Years of bad decisions and stupid mistakes have created an
economic nightmare in this country, but $700 billion in
new debt is not the answer. As a tax-paying American
citizen, I will not support any congressperson who votes
to implement such a policy.  Instead, I submit the
following three steps:

Common Sense Plan.

I. INSURANCE

A. Insure the subprime bonds/mortgages with an underlying
FHA-type insurance.  Government-insured and backed loans
would have an instant market all over the world,creating
immediate and needed liquidity.

B. In order for a company to accept the government-backed
insurance, they must do two things:

1. Rewrite any mortgage that is more than three months
delinquent to a 6% fixed-rate mortgage.
a. Roll all back payments with no late fees or legal
   costs into the balance.  This brings homeowners
   current and allows them a chance to keep their homes.
b. Cancel all prepayment penalties to encourage
   refinancing or the sale of the property to pay off
   the bad loan. In the event of foreclosure or short
   sale, the borrower will not be held liable for any
   deficit balance. FHA does this now, and that
   encourages mortgage companies to go the extra mile
   while working with the borrower—again limiting
   foreclosures and ruined lives.

2. Cancel ALL golden parachutes of EXISTING and FUTURE
CEOs and executive team members as long as the company
holds these government-insured bonds/mortgages.  This
keeps underperforming executives from being paid when
they don’t do their jobs.

C. This backstop will cost less than $50 billion—a small
fraction of the current proposal.




II. MARK TO MARKET

A. Remove mark to market accounting rules for two years
 on only subprime Tier III bonds/mortgages. This keeps
 companies from being forced to artificially mark down
 bonds/mortgages below the value of the underlying
 mortgages and real estate.

B. This move creates patience in the market and has an
 immediate stabilizing effect on failing and ailing
 banks—and it costs the taxpayer nothing.




III. CAPITAL GAINS TAX

A. Remove the capital gains tax completely. Investors
 will flood the real estate and stock market in search
 of tax-free profits, creating tremendous—and immediate—
 liquidity in the markets. Again, this costs the
 taxpayer nothing.

B. This move will be seen as a lightning rod politically
 because many will say it is helping the rich. The truth
 is the rich will benefit, but it will be their money
 that stimulates the economy. This will enable all
 Americans to have more stable jobs and retirement
 investments that go up instead of down. This is
 not a time for envy, and it’s not a time for politics.
 It’s time for all of us, as Americans, to stand up,
 speak out, and fix this mess.

It's show time

I got an update from Real Families, Real Answers. The show will start airing this week on ByuTV. Which is Dish Network channel 9403 or DirectTV channel 374. It is also available streaming on the web at http://byutv.org/streaming/

The schedule is as follows:

Tue 9/23 8:00 pm and 9:30 pm Episode 1 Strengthening Families, part 1

Tue 9/30 8:00 pm and 9:30 pm Episode 2 Strengthening Families, part 2

Tue 10/7 8:00 pm and 9:30 pm Episode 3 Protecting Family Time

Tue 10/14 8:00 pm and 9:30 pm Episode 4 Managing Our Emotions

Tue 10/21 8:00 pm and 9:30 pm Episode 5 Keeping a Marriage Strong, part 1

Tue 10/28 9:30 pm Episode 6 Keeping a Marriage Strong, part 2

Tue 11/4 8:00 pm and 9:30 pm Episode 7 Effective Parenting

Tue 11/11 8: 00 pm and 9:30 pm Episode 8 Parenting Teens

Tue 11/18 8:00 pm and 9:30 pm Episode 9 Family Finances

Tue 11/25 9:30 pm Episode 10 Strengthening Blended Families

Tue 12/2 8:00 pm and 9:30 pm Episode 11 Successful Single Parenting

Tue 12/9 8:00 pm and 9:30 pm Episode 12 Avoiding and Overcoming Pornography

Tue 12/16 8:00 pm and 9:30 pm Episode 13 Family Crucibles

We are featured in episode 13, Family Crucibles. Please try to watch this show and please pray that families will find the support and information they need to be successful in this crazy world. Here http://www.youtube.com/watch?v=kU4MTl4FN84is the promotional video.

The new civil rights movement

God doesn't make mistakes. EVERY person has a purpose whether or not they know it or live up to it. I am so excited at the prospect of one of us(Special mommies) making it to the White house. I pray that God's will be done for this election and for all the critical issues the country is facing at this time. Please take the time to check out this article about Trig Palin, Sarah Palin's 5th child. I was going to vote for McCain before he announced his choice for VP, but now I am actually excited about the prospect of voting now. I will not agree on all the issues with the McCain/Palin camp, but this is one I can honestly say I support because I am also a "Bulldog with lipstick." I have fought tooth and nail for a better life for my kids and I hope that the administration of the country regardless of outcome of the election will join that fight. Those who face challenges deserve a life that is cherished, honored and respected. They deserve to have free will and dignity, not to be incarcerated because the Government funds institutions but not community supports.

I just got busier

I got a part time job to make ends meet. I am taking care of 3 little kids in the afternoons at their house. I saw an ad in the Buy Sell Bulletin asking for someone to watch children in their home and called. I interviewed and she chose me as soon as she talked to me. The children have some minor special needs and she was very cautious about a sitter for them. She said I was a perfect fit for them because of my experience as a mommy to special kiddos. I started last Monday. I am working from 2-5:30 on most days. The 2 younger kids are 1 year old preemie twins and the older is a 5 year old kindergartner. He gets off the bus at around 4:00. I take J.D. with me and then William comes to get him when he gets off work. If he was to work overtime I would pack up the babies and go get Sean and Katy off the bus and head back over well before it is time to get the other little boy off the bus. I prepare for dinner ahead of time so I can just throw something together when I get home and so far everything is running pretty smoothly.

Please pray

Gustav is gearing up to hit the gulf coast. The people who live there are still putting their lives together from Katrina. Pray for wisdom, strength and direction for them and pray for a weakened storm. My daddy got called up in the National Guard to go to New Orleans to be on standby, please pray for him as well. He is finally doing what the intended purpose of the Guard is. Also please pray that we will not have major flooding and tornadoes from this storm here. I will probably plan to be away from home during that time as we live in a mobile home and I am terrified of this sort of thing anyway.

Sean is talking!

Sean began saying a few words back in December and stayed there for awhile. Then over the summer he began to say a few more words and now he is coming up with something new every day. Today he got off the bus and walked over to the DVD player, picked up his "Big Bird Gets Lost" DVD and handed it to me and said,"Big Bird". So of course he got to watch Big Bird! I am so glad he got into camp this summer because he had a great summer and I think that is why he is trying so hard to speak.

Unidagnosed syndromes you tube channel

We are a part of a non profit organization called SWAN USA(Syndromes Without a Name, USA). They have a you tube channel and there is a slide show there that explains what they are for and shows the kids. Katy is on there. I know these kids from talking to their moms for years and we have grieved together as we have lost some over the years. That is the most tragic thing when you talk about undiagnosed kids, they face terrible challenges and the doctors don't know how to help. Please consider shopping online through I-give and designating funds for SWAN USA. This organization is on a crusade to help researchers and doctors help these kids by finding out what is wrong. They also try to educate parents and caregivers on where to go for help.

Update from Real Families Real Answers

I got an e-mail from Blair Treu about the documentary that we filmed for last August.
Here is the letter I got.

To all Families and Scholars who participated in the Real Families, Real Answers documentary series;

Thank you so very much! I’m sorry for the impersonal nature of this letter, but I want to get the word out quickly. Here’s an update on the progress of the series.

We completed principal photography on the Series in December of 2007, and we’ve been busy in the edit rooms ever since. You’re effort and patience with us in this process is about to pay off.

Promotional advertisements for the Series are now playing several times a day on both BYUTV and KBYUTV. If you tune in, you may see yourself or members of your family! If you don’t see yourself, don’t worry, the promo is only 5 minutes long and there was no way to represent all families that participated in all 13 episodes. Tune in beginning September 23 at 7:pm, as we begin to air Real Families, Real Answers in its entirety, and keep an eye out for your family (see table below). Please check local listings or www.byutv.org for more accurate updated information as the broadcast dates draw near. (Scholars, I’m sorry you are not listed in the table below, but I believe most of you are aware of the shows in which you were involved, so just check the shows by topic)

RFRA Series Show Order Air Dates Guest Families

1. Strengthening Families Pt. 1 September 23, 2008 Wiginton/Bennett/Cousin

2. Strengthening Families Pt. 2 September 30, 2008 Wiginton/Bennett/Cousin

3. Protecting Family Time October 7, 2008 Chapman/Cahan

4. Managing Our Emotions October 14, 2008 Giddins/Candland

5. Keeping a Marriage Strong Pt. 1 October 21, 2008 Skolaski/Jackson

6. Keeping a Marriage Strong Pt. 2 October 28, 2008 Chase/Frandsen

7. Effective Parenting November 4, 2008 Rowe/Howard

8. Parenting Teens November 11, 2008 Parsons/Brooks-Nichter/Willis

9. Family Finances November 18, 2008 Hughes/Beverly

10. Strengthening Blended Families November 25, 2008 Webb/Hill-Mullford

11. Successful Single Parenting December 2, 2008 Newell/Dico

12. Family Crucibles December 9, 2008 Johnson/Bussey

13. Avoiding/Pornography December 16, 2008 Hughes

Additional Air Dates (General Conference)

Protecting Family Time October 5, 2008 Chapman/Cahan

Managing Our Emotions October 7, 2008 Giddins/Candland

There are additional broadcast dates for KBYUTV, BYUTV-HD, through this same time period. BYUTV International airings will start world wide in January 09. The series will also be available on other PBS affiliated stations across the United States in 2009. DVD sets are anticipated to become available in early 2009. After the series has been delivered for distribution, I will TRY to get a DVD to each of you who have participated in the series as a special thank you.

You can watch byutv online at their webiste here.

Special Needs ministry

William and I have felt for some time that God is calling us to start a special needs ministry in our area. We are gathering information and praying for guidance on where to go with this. We know that families with disabled members usually don't make it and the divorce rate in this group is 80% or more. We also know that 80% of families with an individual affected by disability are unchurched. I really think that if we as churches do something about that then the divorce rate would most certainly improve in this "unreached people group." Missionaries travel the world to reach "unreached people groups" and we have a huge one living in our very own communities. So why are these families unchurched? From my own experience the churches are simply not meeting their most basic needs for accessibility and understanding. In short they are not meeting them where they are and not even trying to find out how they can help. So what does a family affected with disability need in a church? Well that all depends on the nature of the disability and the needs and personality of every member of that family. This is why no one gets anywhere, how do you prepare for the unknown? The answer lies in scripture. Paul said he was all things to all men so that they could know the love of Christ Jesus. And in Matthew Jesus said that in order to enter the kingdom of Heaven we must become like the little children and those who cause these little ones to stumble might as well have a millstone on their neck and be tossed into the ocean. Now that I think of it, that is exactly how I felt when I was not being met where I was at church, I felt like I was drowning in despair. If the very people who are the temple of the living God are not sharing that love with these families where can they go? The world out there is certainly not going to sustain these most blessed families. God's strength is made perfect in weakness and a person with a disability illustrates God's perfect grace in everyday life. Check out this link on how one church is making a difference in this area.

Check this out!

During the conference there was a young man running around getting pictures of all the children. He was so friendly and truly saw the beauty in those kids. At the concluding breakfast he presented the photos he took and told us about himself and the company he founded. He is a fashion photographer who grew weary of being told what was beautiful and disgusted at how fickle the concept of beauty seemed to be in that industry. He had a wild idea to try to change that and decided to take photos of people the fashion world might reject, but he saw their beauty shine through and wanted to share that beauty with the world. Katy is in his slide show on his website here.

The Conference was awesome!

We met so many families facing many of the same challenges that we face on a day to day basis. I met some people who I am sure will be life long friends. It was so nice to go to a place where no one looks at my kids like they are strange and ask rude questions. Everyone was so nice and I could see so much of Katy in those kids. They had her unstoppable joy and spice for life and many shared gait and mannerisms with her.

We saw 2 geneticist and a GI dr at the conference who offered some great suggestions for Katy's care and will contact Katy's drs about recommendations. We did not get a definitive diagnosis though and will have to wait longer for answers. The geneticists said that she definitely has some features of CdLS, but also has some features that are inconsistent with CdLS, so they can't say for sure until we rule out some other syndromes with similar features. The other syndromes suggested are Rubenstein-Taybi, Floating Harbor, and Seckel Syndrome.

Rubenstein-Taybi is very rare and I really do not feel that Katy has this. There are many characteristics that just don't fit Katy. Floating Harbor does have some familiar characteristics, but also some that just don't fit. Seckel Syndrome is a type of primordial dwarfism and is also very rare. She does look a little like these kids, but they have thin, fine hair and she has lots of thick hair. They are also much smaller than Katy. These syndromes will be suggested to Katy's geneticist and we will test for them. If we get negative test results they suggested that CdLS should be a good diagnosis for her. We are scheduled to see Katy's geneticist in September, but after the Foundation contacts her she might want to see Katy sooner.

Chicago Here we come!

We are going to attend the CdLS National Conference in Chicago. When I heard about the conference I was racking my brain trying to find a way to go. We are broke and haven't been able to go on vacation since having children. We really need to connect with other families facing similar challenges and Katy needs to see experts who can finally give us an answer to the question of whether or not Katy has CdLS. The CdLS Foundation has a scholarship program to pay for the tuition for first time attendees so I applied for that not even knowing how we were going to pay the rest. I prayed and prayed and God kept speaking to me in our quiet time that He would provide because He has a purpose for us at the conference. I then learned that one of the speakers is the author of a book called The Unexpected Journey: Special Paths With Special Children and is going to speak on that topic which fits right in with the ministry that God is calling us to start in our area. I prayed "wow, you really know how to confirm something! Now show me how to pay for it." About a week later I stumbled across something amazing. There is a fund to help people with developmental disabilities in Alabama attend conferences. We will be reimbursed for almost all of our cost! We will fly out tomorrow afternoon from Birmingham to O'Hare and return late Sunday night. We will be staying here. It is by far the nicest place we have ever stayed in. We will also try to make time to go to the Beach on Lake Michigan. Katy will be having a consult with the medical advisory board and we hope we will finally get a diagnosis. Please pray for safe travel and opportunities to learn about God's purpose for our ministry and our family.

I feel very strongly about this

Short bus jokes and use of that horrible word need to be done away with. Check out this site.
http://stopsayingretard.wordpress.com/

Willam is gone for a whole week

He left early this morning. He is going Roxanna, IL with a group of short term missionaries called Carpenters for Christ. They will be helping a church build a new facility so they can meet the needs of their community. He has wanted to go for many years, but this year God worked it all out for him to go. He is so worried about me with the kids with no help, but I know I will be fine. I have plenty of people to turn to if I need help.

My photo shoot

When I won the radio contest I won a spa package and after all that pampering I looked great so William got out the camera and we went up to the top of Vestavia Hills and these are some of the pictures he took of me.

A new milestone?

J.D. is beginning to use the potty some. YAY! If he continues on his trend maybe Katy will follow like she did with walking.

Wow What a day!

Crazy me, I entered a contest on the only radio station we listen to and wouldn't ya know I won! Our radio station is WDJC in Birmingham and they are celebrating 40 years in ministry. They had a contest where you e-mail in how the radio station has made a difference in your life. Here is what I wrote:
http://www.wdjconline.com/page8_sub.php?id=91

Hi WDJC,

We are the Bussey family from Anniston.  WDJC has made such a difference
in our lives.  My daughter was born in November of 2003 with multiple
birth defects that are part of an undiagnosed genetic syndrome.  She was
transferred from our local hospital to Children's hospital when she was
just a few hours old.  That very long drive to Children's after spending
a whole night with her so far away was made bearable by listening to the
familiar, uplifting music we had grown to love over the years.  To our
pleasant surprise the NICU nurses had WDJC on in the unit all the time
so we could get the message we needed and be comforted by the familiar
music we loved amongst the unfamiliar chaos of the unit.  They were also
playing WDJC on the radio at the Ronald McDonald House in the common
areas and other families were just as blessed as we were to constantly
hear the message that no matter how bad things got, God was there and He
loved them.  The blessings we have been granted by the Lord have been
transmitted through your station for years.  Through all of the follow
up appts and long drives to Birmingham you have granted us strength and
brought our spirits up through your message of hope and love in Christ. 
We are stronger because of the ministry of your station many times over.

Another thing I would like to mention is that Mark Harris is also very
important to our family and has given us hope for the future with our
children.  We have 2 special needs children as well as one child that is
typically developing.  The song, "Find Your Wings" that he performed has
really touched us and changed the way we view parenting these very
special children and raising them "in the way they should go".  I have
for a long time wanted to tell him how important that song has been to
our family and we pray that we will have the opportunity to tell him
face to face at the WDJC Birthday party.

William and Jennifer Bussey and children

The party was awesome and I could listen to Mark Harris all day long!

Info on our home

Praying for a buyer

We have managed to pay off all our debt except our mortgage, woohoo! Now we are ready to move and have found a house that will meet our needs. It is in Saks, it has 4 bedrooms and 3 bathrooms(2 masters, one with a walk in shower with seat which would be perfect for Katy), a garage and fenced in yard. The payment will be less than what we were paying for all our debt payments before we paid them off. The problem is we can't buy it until someone buys our home. So please help us get the word out and pray for us.

An article that makes you rethink autism

While I don't agree with everything in this article, it does make you think. Why is different wrong or deficient? http://www.wired.com/images/press/pdf/autism.pdf

New movie

I have for a long time viewed autism differently than the general population. I do not see it as something that has stolen my child or a fate worse than death as I have seen it portrayed in mainstream media. Autism has been described by many autistic adults as being an essential component of their personality, comparable to gender. It colors every thought, every action and every reaction. I have long felt a kinship with Sean and other autistic people. I have read so much and talked to so many autistic people and feel that I am either autistic myself or at least have many of the characteristics. If I do have autism I can see how it is an essential component of one's whole being and can't be separated from who a person is. I do see the world differently than almost everyone I know and maybe that is because I am autistic. Do I think that autism shouldn't be treated? No. I really feel that with the right interventions and acceptance and support autistic people can live full, productive lives full of love and joy. What interventions are the right ones? I can't answer that because each autistic individual has different needs and strengths. Having a means of communication is probably in my opinion the most important thing one can teach an autistic person. The next most important thing is to approach behavior from a totally different perspective. Making sure the child medically, sensory and nutritionally healthy is also of vital importance. A child in pain is a child who can't learn and will act out. Much of what I have learned about myself I have seen first hand in my child. I am amazed at his brilliant mind and totally confused by his limitations, but I accept him as he is and try each day to let him know that I love him and will help him to the best of my ability. I ran across a website about a movie that debates these issues.

Sean's note from school

Sean came home from school today and as I was sorting through his things, I looked in his communication notebook. This is a notebook that the teacher and I can send back and forth explaining what he did that day, so we can stay on the same page. I was thrilled to read her note today.

"We had a great day! Sean has been talking all day. He said mama, daddy, Katy, pop and verbalized for a lot of other words, but couldn't quite get the right word out. We wrote that another child had lost a tooth for news time today. Sean got up and opened his mouth and put my hand where he had lost a tooth We wrote that in the news too!"

How's that for exciting! He is now up to over 10 words! Woohoo! I have dreamed of this for years and now I am just so proud of him.

A breakthrough, maybe!?

Sean is trying to talk!!! He can say some words on command now. He is saying "Sister"-while pointing to Katy, "Bug"(Katy's nick-name), "Daddy"-while pointing to William,"Mama"-while pointing to me, "Cru-tan"-while pointing to his baby brother(that is the baby's nick-name LOL, don't ask!), "Cocoa"-while pointing to his new cat, and "Bubba" while pointing to his cousin (again a nick-name). He just suddenly started doing this, wow! This is the best he has ever done with speech. Maybe we can build on this and ease some of his frustration to stop this behavior problem of his. I am looking feverishly for any idea of how to help him with his behavior. There is not a lot of research on what really works and I have no idea how insurance coverage works for all this.

Why can't anyone tell me what is wrong with her?

This same thing happened last year. Katy is always sick. Last year she was sick from December to April and it looks like she is having a repeat. She has been sick so much and none of her medical staff knows why. She will be fine and then an hour later she is running a 104 degree fever. An hour after that she is fine again. She coughs all the time and sometimes so hard she throws up. She also gets slow gastric emptying, meaning that her stomach slows way down and it takes forever to digest. I change her diet to help and it usually does improve, but then it comes back. I am never going to get her to gain any weight at this rate. She will gain 2 or 3 pounds, then go through one of her spells and lose it all. She just can't break the 25lbs mark. I just want to know why she keeps getting sick. I can't keep dealing with this all the time, I am already the busiest mommy in America, I don't need even more to deal with.

Real Families Real Answers Update

The crew that came to film us for the documentary has updated their blog and we are on there right now. I really cry when I think about what an awesome opportunity this is to tell the world about my blessed Jesus and how he holds us up and is the source of this unstoppable joy that we have as a family. Stay tuned for more updates about the documentary as they come available.

Another parent sounds off

about what autism really is and how it should be "treated".

Sorry it has been so long since I last posted.

It is just the average busy stuff we do all the time getting in my way. Lets see, what has happened lately?

Sean lost his first tooth and got 75 cents from the tooth fairy. He bought a Dr. Pepper out of the soda machine at church with it. And what is hilarious is that he drew a picture of a soda can, taped it to the washing machine, pulls out the detergent dispenser to put money in and pulls out a soda that he put in there. So now I have to watch for money and soda in the washer.

My dishwasher died and I got a new one and it is awesome, no rinsing or rewashing, yippee! But we tore up the flooring in the kitchen removing the old one and putting in the new one. So I guess our next task is to redo the flooring.

We are broke as usual and have no idea what the budget for Christmas is going to look like. I would love to start my shopping and wrapping now, but with no money and no idea how much William's Profit Sharing Payout is going to be, it will have to wait and it is driving me nuts. I made a list with everyone we intend to buy for and some ideas on what to get, that made me feel a little better about it all.

I do have some yummy holiday recipes converted to our dietary needs so we'll just have to see how they turn out. I can't have milk and soy. William can't have sugar and is extremely picky. Sean can't have milk, soy, gluten(wheat, oats, barley, rye and spelt), red food coloring and cured meats. Katy can't have milk, soy, corn, eggs and oranges and only eats purees. J.D. is starting to show some subtle signs of food allergy, but I haven't out what to yet. I will try to eliminate cow milk first since it is the most likely culprit. That won't be hard to do in my house.

My thoughts on the Jena 6

I was so saddened to hear that such thing could still happen in 2007. Okay the white boy who hung the hang man's noose in the tree was wrong and he should have been punished for such blatant terroristic tactics. He however did NOT deserve to be beaten within an inch of his life. The young men who beat him deserve to be charged as adults and should be sent to prison for their crime.

Now to the "American's" who are supporting these boys....Hello this is the same as Arab Americans supporting the 9-11 bombers. Black people should be putting out statements saying that this is not what they had in mind with the civil rights movement and distancing themselves from these boys. This was a hate crime and and an act of terrorism and saying the boys should be charged as juveniles is just absurd.

Another blogger sounds off

about a subject near and dear to my heart here.
Warning contains offensive content.

Big step

We moved our church membership to Westwood Baptist in Weaver/Alexandria on Sunday. This is a huge step for us, but we are really excited about it. William started going to Coldwater Baptist when he was a little kid like 25 years ago. I started there in August of 1996. We met and married there. We have a lot of fond memories of our days there and will never forget the wonderful people there. God has been calling us to move for a long time, well over a year. We were just scared to go. We have never visited any other churches except the time William was called as a interim youth pastor. We questioned our motives and searched for God's will for us and this is it. We debated whether we were confusing our own selfish desires for a church closer to home with a calling from God. Some major stuff has been going on at Coldwater and God gave us the violent shove we needed to finally listen to his call for us. When we visited Westwood we knew right away that it was the living breathing body of Christ. God confirmed to us that this was in fact his will through the preaching and warmth of the staff, especially with our children. Several of the people that work with our kids at school go to church there. That is a really big plus for us because some of the issues we had at Coldwater were directly related to our kids. The preaching is wonderful as it was at Coldwater. The music is just awesome. This church fits us and we are so happy to be there. I pray that God's hand will be on Coldwater and they will reach the community for Christ like no other time in history. We just needed a change and God affirmed that for us.

Check out this video.

Jesus can rescue us from ourselves if we just let him.
Everything video.

They came and now they are gone

The four men (Blair, Dave, R.J. and Tyler) who came to film us were wonderful people with a genuine concern and love for the families in the series. They respected us and told us many times how much they were in awe of how strong we are as a family. We had the opportunity to share the good, the bad and the ugly. Special thanks to Susan Goode who came to the house to film a segment on therapy. Katy's therapist was not in the office and we really wanted to show some therapy. Susan stepped up to the plate. Also special thanks to Carpenetti's Italian Pizzeria for opening their doors for us to film a segment. And also Saks Winn-Dixie for stepping in to help capture the grocery shopping experience. The restaurant on Cheaha also welcomed us. The guys took us out to dinner at the Cheaha restaurant and even helped with the groceries. We have really been struggling lately so that was a true blessing. The show will be the 12th in the series and will be on sometime in the spring. We will probably get a copy and if we do I would like to have a public showing at a church so we can share it with our community. It is going to be soooo good! May The Glory of the Lord shine through our story.

Busy week

The TV crew from BYU TV will be here on Wednesday at 9AM so I will be sending the next few days cleaning like a mad woman because your house can never be clean enough for a TV crew. I am so excited that we will have the opportunity to share what a blessing our family is and how our faith in the Lord has strengthened us through this sometimes difficult journey. We really feel like God chose us to be the parents of these wonderful kids because he knew we would turn to Him for strength and He would be glorified through our lives. I pray that my life is a testimony of His power and Love and that others will see that every day in my life. If anyone would like to watch the baby for me so I can focus on house cleaning I would be delighted to give him up for a couple hours.

The article that changed everything

The article that I stumbled upon with a possible diagnosis for Katy is located here. Please listen to the interview of the little girl's parents remembering their angel.

Katy is into everything

She is walking all over the place now and giggling the whole time. She is soooo proud of her accomplishment. She only uses her wheelchair for the bus now and is using her walker less and walking unassisted more and more each day. It is so exciting to see her excel!!

They are both in school all day, WOOHOO!!

They get on the bus at 7:15 am and get off the bus at 3:00pm. It is so nice to get stuff done and spend some time with J.D. every week day. They are both still trying to get adjusted to their new schedule, but are adjusting well. Sean seems a little off and I can't really put my finger on what is different about him. I am not sure that he is in the right placement at school and am giving his current placement a shot before I decide whether or not it is working for him. I sort of feel that the closed autism unit is a bit restrictive for a boy who functions so well in a regular environment, but his teacher has an excellent track record with getting non-verbal kids talking. She understands his current communication method which is sign language and is using some augmentative communication devices in the classroom. She says that many kids who learn to use these begin speaking shortly after using these. He is doing well with them. I really like her and met some of the other moms at the open house and they like her too.

The first time I called 911

We were waiting for the bus that takes Sean to camp this morning on the front porch. J.D and Katy were playing and J.D. fell down so I went to pick him up and Katy spit up just a little bit because she thought it was her fault and was upset. While I was attending to them I looked around and Sean who had been standing right next to the front porch was gone. I took J.D. and Katy inside and began to look for Sean. I looked and looked and screamed and screamed until my throat hurt. The bus came and the bus driver helped me look. After several minutes I told the bus aide to call 911. I was so scared I can't put it into words adequately. The only other time I was more scared in my whole life was when Katy turned blue and went limp. I picked up the phone and dialed William because I know he can calm me like no other and I needed to remain calm. Before he could answer I heard Sean's voice and looked down, he had crawled under the house again! I just dropped the phone and went to tearing the siding off the front of the house to get him out. William will fix it today, no excuses!!! William was still on the line when I finally realized that I had not hung up the phone before I dropped it. He was so scared just trying to figure out what was going on. I told him what happened and of course he was relieved that Sean was fine. The bus driver and I cleaned Sean up and he got on the bus. It has been an hour and a half and I am still shaky.

Katy is also taking steps!

Katy is just blossoming more everyday! Her daddy was holding her and stood her up on the floor facing the coffee table in the living room about 2 steps away. He let her go and she took 2 steps and we cheered her on. She did this several times cause she LOVED the applause we gave her. I guess she is competitive and couldn't let her little brother show her up.

J.D. is taking steps

I noticed the other day that J.D. was standing unassisted. I clapped my hands and he was so proud of himself. Katy saw him doing it and how much attention he was getting and tried to do it herself, but she just isn't quite ready yet. They are constantly competing for my attention and have found another way to grab mommy's attention. Right now they are fighting over my keys. Well last night J.D. was standing in the living room and he just lunged forward and took 2 steps to get to me. I almost cried to see him make such a wonderful milestone.

Walgreens Rocks!!!

Please consider supporting Walgreens. They are doing some extraordinary things to help people with special needs be productive members of the community. Let's hope that other businesses will follow their lead.

Sean really scared me today!

I was putting Katy down for her nap and I heard Sean go out the front door. So I went out to get him. He had somehow crawled under the front of the house through a vent in the foundation. He was stuck and couldn't get back out. I tried to pull him out, but he just couldn't fit through the hole. I have no idea how he managed to get in there. He was scared and signing "help please, help please!" I managed to pull a piece of siding off so I could get him out. He was so filthy I just put him right in the tub. Just another episode of "Adventures in Autism Land". I have read that many autistic kids like crawling into tight spaces, so I guess this is just par for the course.

The best blender in the world

I have wanted a Vitamix blender ever since Katy turned 2 and I decided to feed her real food through her tube. I have been using babyfood because our blender just couldn't get the food smooth enough to prevent clogging. That got really expensive, but the blender that would do what I needed it to do was the vitamix and it was too expensive too. They cost like $480. With a doctors note stating that the child needs it for tube feeding you can get it for $280. That is still too much for us to pay at one time. I started asking my friends how they got their blenders for their kids. Most of them either saved up the money over a long period of time or they got help from their church. I didn't want to ask such a large amount from our church and saving wasn't realistic with spending so much on baby food each week. I contacted the president of vitamix and explained our situation and sent him a note from Katy's doctor and he DONATED a blender to us. We got the blender on Monday and let me tell you it is worth that $480. The first night Katy had spaghetti and meat sauce with a fresh herb salad through her tube. It is so much easier to meet her nutritional needs with real food. Baby food is expensive and rather void of nutritional content especially calories, fat and protein as well as some vitamins and minerals. She is holding her food down well and her energy levels are up and her color looks better than it ever has. I contacted Katy's dietician and she is excited to help me figure out what Katy's needs are so I can give her lovingly prepared meals even if she has trouble with oral eating. It makes me feel so good to cook for Katy too.